The Patient Centricity Effect – How it benefits Patients, Sites and Sponsors
€ 90,- for non-EUCROF members
€ 60,- for EUCROF members
Patient centricity has become something of a buzz phrase over the last few years. However, behind the name, a concept that offers real value can be found. Such benefits will be discussed during this webinar, highlighting:
- Results from recent research that quantifies the positive business impact to sponsors by taking a patient centric approach;
- Exploration of real examples where the patient has benefited from being put at the heart of clinical research;
- Advantages experienced by sites when patients are central to study planning and implementation
This informative session will provide you with data and examples you can bring back to your own organization, in order to support the development and growth of patient centric practices. Furthermore, a collaborative discussion about the future of patient centricity and its effects on the industry will complete the webinar.
Moreover, the webinar will provide practical examples on how to involve children in clinical trials.
A child-friendly approach is necessary not only in the daily clinical practice, but throughout the research and development process, from setting research priorities, involvement in research design and planning, research conduct to dissemination and communicating research findings. In case of studies involving children, age-tailored information booklets, assent forms and summaries of the results should be written in age-appropriate, simple and understandable language to ensure ease reading by parents and children. Moreover, the investigators should obtain agreement from the child in addition to informed consent of his/her parents, even when such an agreement is not mandatory by law.
An innovative approach for the patients’ involvement in paediatric clinical research is represented by the Young Persons Advisory Groups, an organization composed of youths, patients and carers actively participating in clinical research and advising researchers and their teams.
Vice President, Patient Innovation Center
Patients Advocacy Manager
TEDDY European Network of Excellence for Paediatric Clinical Research
Head of the Training and Advocacy Area
Consorzio per Valutazioni Biologiche e Farmacologiche (CVBF)
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